The agmdhope’s Podcast

AGMD Chronic Intestinal Pseudo-Obstruction (CIPO) Telephone Internet Community Support Group Meeting - September 2015

AGMD presents its Chronic Intestinal Pseudo-Obstruction (CIPO) Telephone Internet Community Support Group meeting. This forum provides a place for patients with CIPO as well as their family members, to voice their concerns, frustrations, share their experiences and gain much needed support.
All program participants have given their consent to AGMD for their voices to be recorded should they decide to speak during the program.
 

AGMD Newly Diagnosed Telephone Internet Community Support Group Meeting - September 2016

AGMD presents it's Newly Diagnosed Telephone Internet Community Support Group Meeting.
When a patient is newly diagnosed with a digestive motility disorder, there are endless questions, fears and tears that may accompany trying to process the news. Patients and their families may go through a roller coaster of emotions. They may feel frightened and very much alone.
All participants have given AGMD their consent to have their voices recorded should they decide to speak during the program.
We encourage you to listen to the voices of those who are beginning their journies of living with a digestive motility disorder and those who are seasoned patients.

AGMD Living With Digestive Motility Disorders Telephone Internet Program - April 2017

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) presents, Living With Digestive Motility Disorders. This open discussion meeting is for anyone affected by motility disease, including patients, parents, partners, and loved ones.  AGMD provides a safe place to talk about everything that goes along with the diagnosis of a motility disease.  Topics include emotional/mental health issues, chronic pain, relationships (personal as well as with medical professionals) ostomies, tubes, lines, and nutrition.
This program is co-facilitated by Brittany Neal. Brittany is a patient with chronic idiopathic pseudo-obstruction since birth. Now in her 30s, she has had numerous surgeries and procedures including multiple central liine placements, G and J-tubes, and has a permanent ileostomy. She is currently TPN dependent and has several health concerns due to CIPO. No longer able to work, she serves as a volunteer for AGMD.
Since the publication of this program, we sadly report that Brittany Neal passed away in February 2018. She is greatly missed. We honor her memory by posting this program. It reflects her caring heart and unconditional dedication and willingness to help others.
The topic of discussion for this program will be focused on the emotional impact of living with digestive motility disorders.  

AGMD Let's Talk Open Discussion Series: Living With Gastroparesis - August 2017

AGMD presents it's Let's Talk Open Discussion Series focusing on, "Living With Gastroparesis.
During the program, we talk about some of the physical and emotional challenges, helpful tips, myths that exist and lessons learned. 

AGMD Living With Digestive Motility Disorders Telephone Internet Program - May 2017

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) presents, Living With Digestive Motility Disorders. This open discussion meeting is for anyone affected by motility disease, including patients, parents, partners, and loved ones.  AGMD provides a safe place to talk about everything that goes along with the diagnosis of a motility disease.  Topics include emotional/mental health issues, chronic pain, relationships (personal as well as with medical professionals) ostomies, tubes, lines, and nutrition.
This program is co-facilitated by Brittany Neal. Brittany is a patient with chronic idiopathic pseudo-obstruction since birth. Now in her 30s, she has had numerous surgeries and procedures including multiple central liine placements, G and J-tubes, and has a permanent ileostomy. She is currently TPN dependent and has several health concerns due to CIPO. No longer able to work, she serves as a volunteer for AGMD.
Since the publication of this program, we sadly report that Brittany Neal passed away in February 2018. She is greatly missed. We honor her memory by posting this program. It reflects her caring heart and unconditional dedication and willingness to help others.
The topic of discussion for this program will be focused on hospitalizations.  Being in the hospital can be a very frightening situation for the patient, but also for the family and caregivers.  Talking about it, planning ahead, preparing yourself as much as possible, and knowing your rights can reduce a lot of the stress, worry and anxiety.  

AGMD Let's Talk Open Discussion Series: The Impact Of Digestive Motility Disorders On Self-Esteem - July 2014

The Association of Gastrointestinal Motility Disorders  |AGMD| presents its, Let's Talk Open Discussion Series. This program focuses on, "The Impact of Digestive Motility Disorders on Self-Esteem."
Living with a digestive motility disorder can greatly attack the patient's self-esteem in so many different ways. Some examples include, trying to cope with the unpredictable symptoms, social isolation, strained or lost relationships, not being believed, surgical scars, belly distention, body image, inability to work, burden on finances, losing one's former self as a result of chronic illness ... each one can tear at an individual's confidence and self-esteem.
During our open discussion, patients will have share their questions, concerns, experiences, tips and obtain much needed support.
All program participants have given AGMD permission for their voices to be recorded.
Listen to this powerful discussion

AGMD Let's Talk Open Discussion Series: It's All In Your Head - Being Believed - May 2014

The Association of Gastrointestinal Motility Disorders (AGMD) presents its Let's Talk Open Discussion Series. This program is entitled, "It's All In Your Head," (Being Believed). When a patient is suffering and is not believed, a roller coaster of emotions can ensue. Patients may even begin to doubt themselves. This is an open discussion where patients share their experiences, insights and coping strategies.

AGMD Let's Talk Open Discussion Series: Dealing With The Guilt - January 2014

AGMD presents it's Let's Talk Open Discussion Series. This presentation focuses on, Dealing With The Guilt.
So many patients struggle with feelings of guilt as a result of their illness. Because digestive motility disorders can infiltrate every aspect of a patient's life, these feelings of guilt can emerge as a result of high medical costs affecting finances and the inability to work, expectations unmet, strain on relationships, dependency on others, being sick all the time,being hospitalized, the inability to attend social events and causing loved ones to worry, etc.
During this program, patients share their experiences and concerns and provide helpful coping strategies. 
All program participants have given their consent to be recorded.
Listen to this heartfelt program