The agmdhope’s Podcast

AGMD Parent Telephone Internet Community Support Group Meeting - May 2018

Parents with a child of any age suffering from a digestive motility disease or disorder need support. Our Telephone Internet Community Support Group program provides a forum for parents to share their questions, concerns, frustrations, and emotions with others who understand.

Small Intestinal Bacterial Overgrowth - A Patient And Professional Perspective - Featuring Dorothy Petito, RD - November 2016

The Association of Gastrointestinal Motility Disorders, Inc. | AGMD | is honored to host Dorothy Petito, RD, as she discusses small bowel bacterial overgrowth from her personal and professional perspective. There will be ample time for questions and responses.
Dorothy Petito, MPH, RD, CDN has been a Registered Dietitian for 32 years and a patient with multiple gastrointestinal motility disorders for 20 years.  She also has been diagnosed with severe pelvic organ prolapse, pelvic floor dysfunction, hypothyroidism, pre-diabetes and reactive hypoglycemia, orthostatic hypotension, iron deficiency anemia and most recently rheumatoid arthritis.  Although she cannot currently work as a Registered Dietitian due to her health issues, she remains passionate about educating her fellow nutrition professionals about the impact that gastrointestinal motility disorders have on nutritional status.  She recognizes how difficult it is to live with a gastrointestinal motility disorder and as a result truly enjoys contributing her nutrition knowledge and experiences as a patient with other patients especially those who have been newly diagnosed.  She feels truly blessed in her personal life to be married to a wonderful and extraordinarily supportive husband and is the proud mother of two young gentlemen.    

AGMD Inspiring Patient | Caregiver Series Featuring Julie Martinez, Parent Of Child With CIPO - April 2015

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) is proud to present this month's Inspiring Patient/Caregiver Series featuring Julie Martinez, a parent of a child with chronic intestinal pseudo-obstruction.
During the program, Julie will chronicle her moving story and will also read some poignant excerpts from her upcoming book.
Any parent, patient or caregiver will find this program to be greatly inspiring and educational.
Julie lives with her husband of 25 years and their 14-year-old daughter Elise. She worked 13 years in the medical field and currently works part-time at a nonprofit HUD agency as a housing counselor-advocator and instructor on financial education and assistance programs for homeowners, especially in cases of hardship. Julie has turned her passion into authoring a soon to be published book and volunteering for AGMD to educate and draw more awareness of CIPO and many of the challenges that are endured by those impacted by chronic illness.

AGMD Inspiring Patient | Caregiver Series Sammy Konigsberg - April- 2017

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) is privileged to present our Inspiring Patient | Caregiver program featuring 16-Year-Old Samantha Konigsberg.
Ever since she was little, Sammy had GI problems, however, they got significantly worse at the age of twelve. She has Neuronal Intestinal Dysplasia, and has had three surgeries and four obstructions within the past four years. Sammy no longer has her colon and is doing much better now. She also struggles with Juvenile Arthritis, Von Willebrand's disease, and chronic migraines.
Sammy has been acting since she was 5-years-old and it's one of her favorite things to do. She's grown up with music and listens to it 24/17. Recently, she has been spending most of her time on inVISABLE, a social media platform that she launched for chronically ill teens and young adults. It's currently an Instagram page, but she is also in the midst of coding an app for it. She really wants to be able to provide a place for the chronically ill community to connect and share their stories in a positive light.
AGMD is honored to have Sammy as a new volunteer and we are privileged to interview such an extraordinary young lady.  
Don't miss this program!  You are sure to be inspired!

An Open Telephone Conversation: Hirschprung’s Disease Featuring Dr. Allan Goldstein - April 2011

AGMD presents Dr. Allan Goldstein, Director of the Pediatric Neurogastroenterology Program at Mass. General Hospital, Marshall K. Bartlett Associate Professor of Surgery at Harvard Medical School, Chief of Pediatric Surgery at Mass. General Hospital, and Surgeon-in-Chief of MassGeneral Hospital for Children. Dr. Goldstein Directs a basic science research lab that focuses on the enteric nervous system. His area of research relates to Hirschsprung disease. We are honored to talk with Dr. Goldstein in this Open Telephone Conversation Focused on Hirschsprung's Disease.

Problems And Limitations Associated With The Gastric Emptying Study - January 2018

Melissa Adams VanHouten will be discussing the usefulness and limitations of the Gastric Emptying Study (GES), a procedure commonly performed to evaluate and diagnose gastroparesis.  We will review the recommended standards; address issues associated with preparation, variation in procedure, and result interpretation; discuss the emotional impact of sometimes confusing and upsetting outcomes; and offer tips for advocating for your best care.

Special AGMD Hope Radio Guest, April "Glitter Queen" Talks About Coping With The Holidays - November 2017

The holidays can be extremely stressful for those who are healthy. But for those suffering from digestive motility disorders, it can be paralyzing. The added stress of trying to get even more things done, the enhanced emphasis on food and social functions, the added financial burdens, the pressure of trying to measure up to expectations, juggling medical appointments or enduring hospitalizations, all the while, struggling with a multitude of unpredictable symptoms, can greatly impair the patient's health and lead to a cornucopia of emotions.
This program will discuss many of these issues and will provide tips for getting through the holidays.

An Open Conversation About Coping With The Unpredictable Nature Of Digestive Motility Disorders

AGMD Hope radio show features an open conversation about Coping With The Unpredictable Nature Of Digestive Motility Disorders hosted by Maryangela DeGrazia-DiTucci and Brittany Neal.