The agmdhope’s Podcast

AGMD Living With Digestive Motility Disorders Telephone Internet Program - March 2017

The Association of Gastrointestinal Motility Disorders, Inc. (AGMD) presents, Living With Digestive Motility Disorders. This open discussion meeting is for anyone affected by motility disease, including patients, parents, partners, and loved ones.  AGMD provides a safe place to talk about everything that goes along with the diagnosis of a motility disease.  Topics include emotional/mental health issues, chronic pain, relationships (personal as well as with medical professionals) ostomies, tubes, lines, and nutrition.
Our program will be co-facilitated by Brittany Neal. Brittany is a patient with chronic idiopathic pseudo-obstruction since birth. Now in her 30s, she has had numerous surgeries and procedures including multiple central liine placements, G and J-tubes, and has a permanent ileostomy. She is currently TPN dependent and has several health concerns due to CIPO. No longer able to work, she serves as a volunteer for AGMD.
This month's topic will focus on ostomies.  Have you ever met someone with an ostomy?  I bet you have and you don't even know it.  Have your doctors brought up having surgery that may result in a temporary or permanent ostomy?  Ever wondered what life would be like?  Join March's Living with Motility Disorders Conference call to hear what life is like, get questions answers, get myths busted and to find out how live well with an ostomy.
Since the publication of this program, we sadly report that Brittany Neal passed away in February 2018. She is greatly missed. We honor her memory by posting this program. It reflects her caring heart and unconditional dedication and willingness to help others.

AGMD Disorders of the Esophagus Telephone Internet Community Support Group Meeting - November 2014

Welcome to our AGMD Disorders of the Esophagus Telephone Internet Community Support Group meeting.
This meeting enables patients and their family members to voice their questions, concerns, emotions and experiences while gaining much needed support and understand. It is also a place to learn from others who are traveling similar motility journeys.
All participants have given their consent to AGMD to have their voices recorded during the program if they have chosen to speak.

AGMD Let's Talk Open Discussion Series: Testing Relationships - June 2014

AGMD presents its Let's Talk Open Discussion Series. This program focuses on Testing Relationships.
Relationships are often tested to the max when someone suffers from a digestive motility disorder. Some relationships strengthen, while others crumble under the strain.  From spouses, companions, family members, friends, co-workers ... the list goes on as each relationship undergoes the major test of living a life with chronic digestive motility disorders and all they encompass.
All participants have given their consent to have their voices recorded if they chose to speak during the program.

AGMD Patient Telephone Internet Community Support Group Meeting - June 2014

AGMD Presents its Patient Telephone Internet Community Support Group meeting. 
This forum provides a place for patients as well as their family members, to voice their concerns, frustrations, share their experiences and gain much needed support.
All program participants have given their consent to AGMD for their voices to be recorded should they decide to speak during the program.

AGMD Gastroparesis Telephone Internet Community Support Group Meeting - May 2015

AGMD presents its Gastroparesis Telephone Internet Community Support Group meeting. 
This program provides a forum for patients and their loved ones to share their questions, concerns and frustrations and receive much needed support.
All participants gave AGMD their consent to be recorded if they chose to speak during the program.

AGMD Young Adult Telephone Internet Community Support Group Meeting - September 2015

AGMD presents its Young Adult Telephone Internet Community Support Group meeting. This meeting is co-facilitated by Andrew Carbone, a young adult patient with chronic intestinal pseudo-obstruction, gastroparesis and gastroesophageal reflux disease. 
All participants have consented to AGMD to have their voices recorded during the program should they decide to speak.
 

AGMD Chronic Intestinal Pseudo-Obstruction (CIPO) Telephone Internet Community Support Group Meeting - September 2015

AGMD presents its Chronic Intestinal Pseudo-Obstruction (CIPO) Telephone Internet Community Support Group meeting. This forum provides a place for patients with CIPO as well as their family members, to voice their concerns, frustrations, share their experiences and gain much needed support.
All program participants have given their consent to AGMD for their voices to be recorded should they decide to speak during the program.
 

AGMD Newly Diagnosed Telephone Internet Community Support Group Meeting - September 2016

AGMD presents it's Newly Diagnosed Telephone Internet Community Support Group Meeting.
When a patient is newly diagnosed with a digestive motility disorder, there are endless questions, fears and tears that may accompany trying to process the news. Patients and their families may go through a roller coaster of emotions. They may feel frightened and very much alone.
All participants have given AGMD their consent to have their voices recorded should they decide to speak during the program.
We encourage you to listen to the voices of those who are beginning their journies of living with a digestive motility disorder and those who are seasoned patients.