Episodes
Monday Sep 10, 2018
Monday Sep 10, 2018
Listen to a candid interview of Lillian Kaye VanHouten as we talk about what it's like being a daughter of a gastroparesis patient and advocate. The program promises to be enlightening and inspiring!
Lillian Kaye VanHouten is the daughter of Melissa Adams VanHouten, a Gastroparesis patient and advocate. Lilly is an eighth-grade honors student at a Lutheran middle school who enjoys drawing, writing, singing, and acting, and who would like to pursue a career in the entertainment field and/or zookeeping (as she has a passion for animals, especially giraffes). She helps her mother cope with the sometimes-difficult world of chronic illness and advocates on her behalf whenever she can.
Monday Sep 10, 2018
Monday Sep 10, 2018
Carrie is a wife, mother of 3, student finishing up my MPA at UCCS & I also have a part time job. But her passion is advocating for all Functional Gastrointestinal and Motility Disorders (FGIMD), especially pediatric patients. Her youngest son has multiple FGIMDs & she has IBS-C. In 2016 Carrie started Weston's World (FGIMD- Functional GI & Motility Disorders).
https://www.facebook.com/groups/545456308959231/
Carrie is also a volunteer & parent mentor for AGMD, an Awareness Ambassador for IFFGD, & also a group moderator on AGMDs group on Inspire. She has requested & obtained State of Michigan FGIMD Awareness proclamations 3 years in a row from Gov. Rick Snyder. Her goal is to help educate & spread awareness throughout the medical community and the general public so that more people struggling with FGIMDs can get proper care, diagnosis & treaments in a timely manner.
AGMD is grateful to Carrie for her dedication, advocacy, education, awareness and heart. Her passion is evident and her openess to share her knowledge and personal life as a patient and mother of a child with FGIMDs is beyond appreciated and inspiring.
Monday Sep 10, 2018
Monday Sep 10, 2018
Ceciel Rooker, an irritable bowel syndrome (IBS) patient and Executive Director of a patient group, the International Foundation for Functional Gastrointestinal Disorders (IFFGD), talks about her life with IBS and her passion for advocating, educating, and helping patients impacted by this challenging digestive disorder.
The International Foundation for Functional Gastrointestinal Disorders (IFFGD) is an organization that has a long history of working to improve medical care by conveying the patient perspective while engaging with various stakeholders, including clinicians, regulators, and the research community.
The Association of Gastrointestinal Motility Disorders, Inc. |AGMD| is grateful to the IFFGD and Ceciel Rooker for the impressive work they are doing and also for partnering with us in order to highlight IBS.
LEARN, SHARE, AND BE INSPIRED!
AGMD is a nonprofit international organization that serves as an integral educational resource for digestive motility diseases and disorders. It also functions as an important information clearinghouse for members of the medical, scientific and nutritional communities. In addition, AGMD provides a forum of support for patients (and their families) suffering from digestive motility diseases and disorders.
We are honored to sponsor our podcasts in order to educate, advocate, and inspire!
To learn more about AGMD visit our website at www.agmdhope.org